more b/w, still no answers

When we last left theworms in her quest for answers she had more blood drawn and was waiting for more answers.

Where is theworms today? Still waiting for answers :(

So my b/w with the hematologist still can back with my Von Willebrand Factor showing a disproportionate ratio. my blood was then sent to Wisconsin for additional testing.

Because of all this blood weirdness I decided to do a second opinion consult with Dr. Braverman.
I met with Dr. B on 3/8 and it was a really great meeting and he is really intelligent. His main focus is RPL and trying to find the cause and address it.

http://www.reproductiveimmunology.com/

So, I'm paraphrasing a lot but here's some info from my meeting (he was a lot more technical). :)

He doesn't believe that my losses are due to crappy embryos, he say my embryos look good and the way I'm m/c'ing (the spontaneous bleeding) doesn't make him think that the embryos are the problem.

He has 3 theories on why I'm m/c'ing

1. I have this bleeding issue and while it is very rare it, he has seen it before and wants to the see the b/w the hema sent to Wisc. If the b/w work comes back again with the ratio being off he wants to come up with a plan with my hema and RE and this may involve shots or infusions of the factor that is low in my blood.

If I the have two blood issues, my factor II and then the Von Willebrand Defect, they are in a sense opposites and can cancel each other and my tendency to bleed means I should NOT be any blood thinners, no baby aspirin, lovenox and fish oil. He asked me to stop the fish oil and I am. (he gave a very detailed explanation of how each of these thin the blood)

For most ladies with clotting issues, clots form in the placenta and then the fetus doesn't get all the essential stuff it needs to survive and you m/c.

In my case, Dr. B thinks I have the opposite happening. So much blood is rushing to the ute that it is causing me to m/c.

Most people who have this issue get infusions when they experience a significant bleed, in my case, we can't wait for the bleed because it's too late. He wants a plan in place before.

2. Option 2 - I have an undiagnosed immune issue.

He's running his immune testing b/w and if any of it comes back with red flags we'll deal with it then.

3. Option 3 - my PCOS characteristics but not full-fledged PCOS

Quick background - I've been d/x'ed and then taken away and the again and have been on Met but haven't been since April of 2009.

He's running some more b/w. He thinks that I should be on Met. At the very least Met has been shown to prevent m/c. I'm starting Met today.

He used to work with my RE, so he is going to talk to him about next steps. I'm not leaving my RE, I love him and he is willing to do whatever to make sure I stay pregnant.

Dr. B wants me to have constant monitoring and will be tailoring my treatment based on my b/w and how my body is reacting to pregnancy.

I told him that my Hema is at Cornell and they don't buy into most of this immune stuff and he said not to worry about it. He said, I can't tell you how many of my patients cycle at cornell and come to me for immune stuff. I was like, so in a way you're improving their stats w/o their knowledge :)

If you are experiencing RPL and want some answers go to Dr. B. He does phone consults, weekend appts and cycles with patients OOS all the time.

My hema knows to discuss my case with both Dr. B and Dr. T.

and I lef that meeting with hope that I haven't felt in a long time. I felt like my old hopeful self.

So, since that meeting my b/w from Wisc came back with disproportionate ratio but the additional collagen binding tests they ran showed normal targets. So they are at the end of the line with this and have no explanation for my whacko ratios.

Dr. B is going to discuss with hema and check for next steps.

I'm honestly feeling very frustrated with the b/w, WTF!!!!! So there is nothing left to check and it's ok that my VFW has a disproportiate ratio!!!

Anyway, I'm still waiting for Dr. B's immune testing to come back.

My other b/w came back and my fasting insulin, 2 hour glucose, karytyping and nk cells came back normal.

In the meantime I am on BCP for a Frozen Embryo Transfer sometime this Spring.

I also had a hysteroscopy done on 2/28 and a small polyp was removed and they also are checking for any unknown ute infection.

I also had my 2nd opinion consult with CCRM on 2/15. Nothing new or earth-shattering, just suggested doing CGH testing.

So, as my RE says I'm doing some serious base-covering :) If all of this comes to nothing, at least I know I tried everything.

While I was really hopeful after my appt. w/ Dr. B, I'm still scared to death of another m/c.

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I also had an amazing weekend away in AC with some fabulous ladies from my IF message board :)

You know them as *NestingAway*, Ked1068, KOYN and psychmusetls.

I <3 my girls and wish them nothing but happiness, peace and BFsP's!